Update  #  12

Wednesday - Started treatments, all went well. Leave CHLA for trip to UCLA about 7:30 am. Receive his treatment then get transported back to CHLA about 12:00 noon. The travel and the treatment tend to tire him out so the visit outside this pm was short but enjoyable. Thursday - Day 2 of treatment with the same schedule as Wednesday. Today did not go as well as day 1. Had issues with the port, very painful and just did not function well. Upon return to CHLA he continued to have port issues, after lots of painful poking and prodding, a new port was installed and seems to be working much better. Ethan was very tired, emotionally and physically this pm, but his day was not over yet. About 6:00 pm he was transferred to the 6th floor. Just what he did not want and he let them know it. Treatment schedule will remain the same, Mon. through Fri. for about 6 weeks. In addition, he will also receive physical therapy each afternoon. We will see how this goes and how he deals with this new schedule. Thanks to all for your continued prayers and support, we have great friends !