and went to CHLA for our lab work - got in and out with zero issues. Ethan
is having some balance issues - has Grandpa and Grandma a bit worried.
Made notes and contacted CHLA. Info : keep an eye on him and hopefully
he is just tired. Will meet with his Dr. team next Wednesday.
Even though he was a bit "off", he wanted to see the dinosaurs at the LA
Museum next to USC. The visit did not last all that long, he got tired and was
not real stable. Ethan enjoyed what he did see and wants to return again.
As we were leaving the museum, Ethan fell asleep and did not awaken until we
pulled into the driveway at home. I am thinking that some of his unstable
walking today could be stress related. He did not sleep real well Tuesday
night and he asked several times if today was lab only or extra stuff. I cannot
imagine what must be going through his head with all this process.
Again - thanks to all who continue to pray and support Ethan, we could not
do all this without you.
Ethan with dino display at LA County Museum
8-28-2013
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