Thursday, March 6, 2014

Update # 98

Ethan is having some good days in a row.  He tires easily and has several
power naps a day,  but I must say he has been "up" of late.  He continues
to enjoy being read to, he enjoys watching TV (generally),  and then there
are the moments when we try to meet his requests for eating.  Some days
are very difficult for him to swallow anything.  Then there are days that
actually do quite well.   Wish there was some pattern here !

Yesterday was a great day.  Papa was going to get a haircut and Ethan thought
that was a good idea for himself as well.  After all the labor of loading his
chair, dressing him, etc.  we went.  The drive was enjoyable and he looked
all around.  When asked if he liked being out and seeing things he said yes.
The haircuts went well, David and Cindy (Keyes Mane Design) are so
great with Ethan.  They go way out of their way to make him feel good,
and always stop their activities to talk to him.  Ethan really likes them !
When the cuts were done we came back home, once in the house Ethan
fell asleep and had a 30 minute nap.

We want to thank everyone who prays for Ethan and all of the support
that we receive.  Thanks to Dave & Wendy who pushed Ethan ahead in
the weekly mail count with a card,  he does enjoy getting mail.  Thanks
to you all including the many readers of this post.


Cindy,  David,  and Ethan
sporting his new haircut.

March  2014

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