Update # 107

Today is day 388 - just an amazing accomplishment by Ethan.
This past week has been the worst.  He has had difficulties in
breathing,  and swallowing.  And with his limited ability to
communicate with us it often became difficult to understand
what his needs were.

Today is better, but still not back to how things were a week ago.
The big deal now is for Papa not to trip on Ethan's oxygen line.
Do not know why Ethan finds it funny when Papa does the
two step in recovery (sometimes just for Ethan's amusement).

Ethan had a very busy Sunday.  A couple of relatives came by,
two different hospice nurses, phone call from his nurse - Marta,
and a visit from Dr. Mall.  And his big surprise came in the
afternoon when Alisha (Ducky) from CHLA came for a
"friend" visit.  He was very happy to see her and she was so nice.
She read him an entire book that she brought him in addition to
providing a huge smile on Ethan's face.  Ended up staying for quite a
while - in part to Ethan holding her hand and wanting her to stay.
She was very nice with the whole thing - super neat lady !

We continue to be thankful for all the prayers and support from
so many.  The cards are unbelievable - and are everywhere.
Thank you all.