Update # 125

Day 470 and Ethan continues to set the bar higher.

Ethan has had a good past few days.  His ability to eat
goes from easy and a lot to difficult and not very much.
He still continues to hover about 38 lbs   (17.2 kg)  so
I guess he is okay.

His left eye has become quite red and waters  a lot.  His
nurse ( Marta ) got him some eye medicine and hopefully
that will clear up quickly.

The past couple of days Ethan has been really into watching
the DVD "Mulan".  Seems as if the want has changed again.
He usually has several days in a row where he wants one
specific DVD or genre then will totally switch to something
different.

Yesterday afternoon Ethan agreed to stay with Dad ( Kent )
and let Grandma and Papa go out for some time with good
friends Tom & Karen.  We had a bit to eat and was back
to see him before bed.  Ethan also got to visit a short time
with Tom and Karen and showed them his "Camel" card.
A card that Ethan thinks is special which just happens to
be from Tom & Karen's son Logan - very cool !

We continue to be thankful for the prayers and support
we continue to receive.  We are also lucky to have great family
and friends - thanks Tom and Karen.