Sunday, July 20, 2014

Update # 129

Day  491  and Ethan continues to move on ...

Ethan had a special visitor from LA today.  Alisha,  a special
lady from his time at CHLA came to visit again.  He always
enjoys seeing her and she always has "3 hugs and 3 kisses"
for him.  In addition to her visit, she also brought him a
couple of DVDs ( Scooby-Doo  & Ninja Turtles ).  It was
really nice to see her again !

Early this past week, Cousin Dan came by and helped Papa
put in a window cooler for me .  It really helps in the late afternoon
when it is really hot out,  thanks Cousin Dan.  While here, he
also brought Ethan some audio books - real cool !!!

On Friday Auntie Kay (not really my aunt) came to visit Grandma
( and see me ).  Ethan really likes her and without prompting gave
her a huge hug and posed for some pictures.  She is such a nice lady.

Ethan was happy last night (Saturday).  As he was getting ready for bed,
Papa's friend Tom called.  As they talked Ethan motioned for the phone.
Papa held the phone next to Ethan's ear and in a very weak voice,
Ethan tried to talk to Tom.  It was so great, as Ethan usually will not try
to use his voice - very special moment.  Thanks Tom, after the call we
asked Ethan if he could hear you and he said yes, did you like that, yes !

Thanks again to all of you for the support and prayers.  We could never
have reached this point in time without it !



Ethan and Dad (Kent) having
some rough house (mostly
hugs).

18  July  2014

No comments:

Post a Comment