Update  #  14

Thursday was a great day !  Ethan had in his own words, "a very busy and good day".
The therapy folks and Ethan have set up a rewards system to keep him motivated. Dad had
brought him a tie to wear (like some of the Drs.) so his reward will be another tie.
Ice cream has been taken off the can eat list. It has something to do with swallowing.
He was not real happy about that, but pudding and yogurt are still okay.  His days are really
full, treatment at UCLA in the am and 3 hours of therapy at CHLA in the pm. His few hours
of down time and sleep are mixed with getting his vital signs checked and taking various meds - ugh...  He had the staff remove his bedspread. "Aunty" Kay brought him a quilt that she and
others from her church made - he is really happy and uses it all the time. ( BIG smile )
Thank you all for your continued prayers and support we, the family, and Ethan cannot
thank you enough.