Friday, April 26, 2013

Update  #  20

Came to CHLA to visit Ethan about noon last Tuesday.  That was the
day he was changed to out patient and moved to Ronald McDonald House.
We have been with him 24/7 until the am of the 27th (Sat), then will
come back to Riverside.  Sunday night we will return to stay 24/7 through
the next week.  He goes each morning to UCLA for treatments and then
has various med times throughout the rest of the day.  He is planned to have
his last UCLA treatment on May 9th. (yea)  The afternoons have been full
of rest (he still tires easily), games, some TV, and lots of reading (smile).
I have created a monster, he wanted to play cards - so... now he beats the
heck out of me at "21". Am trying to talk him into going to Las Vegas but
he isn't sure yet.  I tire easily also, stress out a lot, but still continue to be
in awe of this young man.  The effect he has on me and all around him is
unreal yet so amazing !  Thanks again for all your prayers and support, we truly
are thankful for all.  Ethan says "hello".

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