Update  #  29

Went to LA this morning (ugh - 2h 40m) to get some blood samples and meet with the "team".  Other than traffic, the CHLA experience went really well.  He had Grandma make some chocolate chip cookies which he delivered to all his old friends.  Talk about smiles and greetings !  Ethan was happy showing Dad, Grandma, and Papa all around.  Our next trip will be on June 3 for a MRI, then June 5 to meet with the team again.  The med schedule following these visits is still a work in progress.  He also has 1 speech, 1 physical, and 1 occupational therapy visits per week.  These therapy visits are all local so no trip to LA is needed. The only down time today was when Ethan asked if he would have to stay at CHLA again.  When we told him no, not this trip,  he was much more relaxed and happy.  Can't begin to know what he is feeling / going through - what a warrior.