Update  #  30

Through CHLA,  Ethan and family were invited to Hope - A - Palooza 2013 held at CBS TV in Studio City.  Upon arriving,  everyone was given a T-Shirt and ball cap.  After passing through security, we were taken to the event.  Everything at the event was free including games, prizes, giveaways, food, and drinks.  It proved to be a  GREAT  afternoon !  Ethan enjoyed the games, won some prizes,  ate lunch,  and got to meet some CBS folks.  His best meetings was some one on one with "Wall  E ".  He was not sure at first about Darth Vader and the Storm Troopers,  but really liked trying to talk with Chewbaka.

Everyone who has stepped up to improve and / or make enjoyable Ethan's life are for lack of a better phrase - WONDERFUL !  This family knows  that our friends are truly "friends",  and through their prayers and support -we continue to endure - THANK YOU