Thursday, July 18, 2013

Update # 39

Wednesday was another trip to CHLA.  No rooms available so we did the "a.m." drive.  Left Riverside at 7:30 and got to CHLA at 10:00.  We were a bit late, but all went well.  Lab work took about 15 minutes and the results were again  good.  They want Ethan to get another MRI and have scheduled it for July 30.

Wednesday evening was the backyard family baseball game.  Talk about fun and lots of laughs !  Ethan's energy lasted longer than we thought but still got tired early.  Got a bath and he was out,  slept all night.   This time last year he had good eye/hand coordination and could hit the ball (mostly off a "T"), and run well.  Last night was different, missed the ball a lot (soft toss) and when he ran it was not the care free abandon usually enjoyed by a 5 year old. But he continues to improve daily and is probably not as "off" as Grandpa thinks.  But the MOST important thing was it was an activity he picked and he had fun !

Life is good and we thank everyone for their prayers and support.   Take care all and be safe ...


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