Ethan's lab work went well and all were happy with the results. He also had an exam with his lead Dr. this week. Ethan really likes her and both seem to get along well. She noted that he is continuing to shed the extra weight he gained during the radiation and meds portion of treatment ( good thing ). She noted he has a weakness on his left side as compared to the right side, but not a big concern at this time ( okay thing ). Over all he is happy, active, and healthy under the situation ( good thing ).
Ethan has finished his 3 weeks of no meds, so CHLA set us up with his new meds for the week. For the next 5 days Ethan will take 3 meds at specific times each am and 1 med each pm. These are in addition to his week-end meds which are also required each am & pm at specific times. Although some are, in Ethan's words, NASTY - he does his part with little or no fuss. His overall outlook and behavior never fail to amaze me.
To celebrate the "4th of July", Ethan will be going to a ball game. He enjoys the atmosphere, the hot dogs, watching the players, and today : Fireworks !
We all want to thank you for your prayers and support. It is because of you that his Dr. was able to say this week - "He's doing so good !" I wish I could explain it ... just amazing.
Ethan and Grandma. Every once in a while he still wants to wear a tie (like important people do).
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