has been 2 or 3 naps. One of his doctors gave him a "build a bear"
which he likes to keep close. The bear is like him, if you feel the
back of his head you can feel the "shunt" and on his chest you can feel
his "port". Because they are the same Ethan keeps him close and talks
to him about how "they" are feeling.
As of now Ethan continues to have balance issues, vision issues, all
liquids need to be thickened, he has mood issues and cries because he
cannot do some things. Part of this is due to the tumor's growth and
some is due to the meds he is currently taking.
Ethan is scheduled to have lab work and another visit with the team this
Wednesday. Some difficult decisions for parents and doctors loom
ahead. Thank you all for your prayers and support, all involved will need them
in the days ahead.
Ethan and his "build- a - bear"
in a power nap.
16 Sept. 2013
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