Another Wednesday, which means a trip to CHLA for labs and another meeting with the team. Today's results are to reduce the meds he is taking now, and delay until next week the new meds. He is still having balance, vision, and swallowing issues. His mood goes from wild happy to sad and crying at the drop of a hat. He gets VERY frustrated with what is happening as he knows something is wrong but he cannot fix it. He is also aware that last time he was like this he was hospitalized. He
told his Dad today that he does not ever want to stay there (hospital) again - wow !
We continue to be blessed with prayers and support from so many, thank you all very much. We are taking each day as it comes and know that what needs to be will be. Again, THANK YOU.
Ethan on the floor letting Papa know that the ball game is about to start.
1 Sept. 2013
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