We had a schedule to do lab work at CHLA weekly and see the
team every three weeks. But after lab results and physical exam
last week that is no longer in place. Although it is a step backward
which hurts, I admit we all will not miss that stress filled trip.
Wednesday we have a meeting at home with the hospice folks.
Dad and Mom will be setting plans in place and finding out what
services are available. Really not looking forward to the stress
with this meeting.
In looking at Ethan's pictures via "slideshow on iPhoto" we realized
that one year ago this week, Ethan was having a ball with Dad at
Sea World. It was a very neat trip full of fun and adventure. We had
"no clue" that Ethan had any issues at that time. It is amazing what
can happen over a year in time !
Thank all of you for your continued support and prayers. 208 days
and counting - Thank You !
Ethan full of joy at Sea World
San Diego Oct. 2012.
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