to Disneyland. Because it is said to be the happiest place on earth, it may have had
some effect on the mostly clear skies and 68 * there. Because Ethan uses the "chair"
when needing to go long distances - we gave it a try today. Disney has made it
really easy to get on / off rides and the cast members were SO NICE to Ethan,
it turned out really nice. One cast member was extra special to Ethan, taking a
picture with him and giving him a "Kiss" - he was so excited / happy with
that !
Wednesday we return to CHLA for some lab work and meet with the team
again. It has been several weeks since his last visit and I am curious to hear
what they have to say. Hospice is in place and they come by twice a week
to check in. Ethan puts up with all the checks with only minor fuss, but it
is obvious he does not like all the checking.
Again thanks to all for the prayers and support. A special thanks to Dave
and Wendy, the "T" stuff and of course the mustaches were / are great !
His new girl ...
10-28-2013
The friend he saw on TV this morning
and met today.
10-28-2013
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