day with a trip to CHLA and some time at Griffith Observatory
in the early evening.
The visit at CHLA was longer than planned. His port would
not access as we had wanted, so some extra work and time to
get everything working for blood draws. Time waiting is the
hardest for Ethan. His mental set is always "in and out", and
works well when everything is good. But if anything goes
wrong or is off schedule - he gets a pretty nasty attitude.
Most of the attitude, like the weight, is a side effect of one of
his drugs which ends tomorrow (yea ! ). Gradually his own
behavior and attitude will return ( smile ).
When we were ready to leave LA it was 4:30 and a traffic
nightmare. So Ethan picked In and Out for eating and then
we went up to Griffith Observatory for the evening views.
Dinner was fine and the views were super. Ethan was totally
impressed with all the lights of LA as seen from the hilltop.
He was "look at that, and look over there ...", was fun to
watch him enjoy it.
About 7:45 we loaded up and headed home. Traffic was
not to bad and the trip only took about an hour and a half.
Ethan sleep most of the return trip and was ready to play
when we got home.
Ethan is about the same as last week and is gradually getting
use to being in the "chair" for longer distances. He does not
like how things are going, but who would !
Thanks to all for your prayers and support, and special thanks to
Dave and Wendy for a very special birthday. And I also want to
thank all the folks at CHLA that just drop everything and chat with
Ethan when he pops in unannounced.
Ethan opening gifts on his
6th birthday.
3 Nov. 2013
Ethan looking at the lights of L.A.
from Griffith Observatory.
6 Nov. 2013
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