Update # 73

Just a short note on Ethan's condition.  His vision is still
a major concern for him.  He asks if it will get better and
the answer is hard.  His large motor skills bounce from
weak to uncontrolled.  He often has small muscle tremors
and unexplained muscle jerking.  He requires assistance
to stand and walk and uses his chair (type of wheelchair)
for all travels of any distance.  He still has issues with
swallowing and all liquids must be thickened.  His
speech is at times very hard to understand and he tells
us his mouth won't say the words right.  Small motor
skills are the hardest for him, and he sometimes needs help
eating.  Holding pencils or crayons is very difficult and
the look he gives you is hard to explain. The facial
palsy on the left side is still here but not any worse.
He still loves stories, TV,  music,  games,  and hugging
Grandma.

We all continue to thank you for your prayers and
support.  Special thanks to Tom & Karen for being
there and Dave & Wendy who have provided
Ethan with so much joy.

Ethan in the driver's seat  at the
Autopia Ride in Disneyland.

October 2013