very tiring for him physically and emotionally. His ability
to sit on his own is now becoming difficult and he is getting
frustrated with his inability to control his movements. Add
that to his labor to speak clearly and you have an unhappy
Ethan. We also notice that he is taking in less food and liquid
and this has us all worried (chew and swallow is very hard)
By his choice, he wants no one but Dad, or maybe Grandma
near him at night. During the day he likes Dad always, then
Papa, Grandma, and Uncle Keith. He is most at ease and
comfortable when very close to us as we read to him and
sometimes watch TV with him.
We continue to thank all of you for your prayers and support.
We could not have gotten this far without them !
Ethan resting on the couch under
his prayer blanket from Auntie Kay
and his two friends from
"Monsters U", Mike and Sully.
2 Dec. 2013
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