As Ethan goes through this phase, he now is restricted to a thickened
liquid diet only. His ability to swallow is almost gone. He again
cannot walk or sit upright on his own, but tries too. He spends most of
his days listening to stories (enjoys this a lot), watching TV / videos,
or playing with his toys. The toy activities are sometimes stressful
as his hand movement and the toys do not always cooperate with what
his mind (still very good) wants to do. The worst part is the speech.
He wants to communicate so bad and gets frustrated when we do not
understand. We made some picture cards which help a lot, but using them
is a pain sometimes for all of us.
As we enjoy our time with Ethan, we are constantly reminded of the
great friends we have and the power of prayers. Ethan has friends
from all over the world, and many other states. He receives more mail
than anyone else at this address and likes to point that out to us. Ethan
enjoys an older TV show called "Zorro", and thanks to Tom and Karen
we now have a book of Zorro adventures that we read . And he still
talks about his big truck ride with Dave and Wendy - who are also
responsible for much of the mail and gifts we have. Yesterday Ethan
received about 35 get well / happy holidays cards from same age
students at a school in Arizona. This morning two friends from teaching days
invited me out for dinner - get away for a bit. So very nice, thanks Kim and
Deb, you two are so nice ! There really are some truly great people
out there and we are lucky to know some - THANK YOU !
Here are a couple of pictures, one year apart. Amazing the difference
a year makes. Again thank you all for your prayers and support.
Ethan hanging out on the floor
with his Uncle Keith.
12 Dec. 2013
Ethan and Dad (Kent) playing
in the back yard - good times.
11 Dec. 2012
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