Day 433 - who could of guessed ?
The late afternoon of the 20th through the night of the 21st was a
second big scare with Ethan. His breathing became VERY labored,
he had several uncontrolled body shakes ( not violent but lasting
about 15 - 30 seconds ), unable to get much of anything in
because of his lack of swallowing, and he was overall very
uncomfortable.
We were all very surprised and super happy when Ethan awoke this
morning and had his special personality back and was showing no
signs of what was the day before. This is the second time that he has
had a health issue and almost like magic he seems to will himself
back to how he was before !
When Marta, hospice nurse, came by to check on him this morning,
she was also surprised to see how he was doing. He now has his
oxygen flow amount turned back down, and the frequency of his
breathing treatments are also reduced again. Really glad Marta comes
by so often, great peace of mind for us.
Each night when Ethan goes to sleep, his ceiling has reflective stars
attached that glow for a bit after the lights are out. He also has a
night lite type item that shines star shapes all around his room.
As I shared with his Dad, if the stars come out in his night sky,
all is well . Ethan sure likes them - so they continue to shine.
Thanks to all for the prayers and support. They obviously are
working in his behalf - Thank You .
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