Update # 119

Day 438 and counting !

Ethan is back to his normal routine and behaviors.   He is
interacting as before with family and is smiling at the new
day.  We got Ethan's weight today, 41.3 lbs (18.7 kg).  So
from his last weight until today, he has only lost 0.3 lbs.
(0.1 kg).  That is very good news !

If their is a down side, it is frustration at his inability to
communicate with us.  He tries to talk, which is just
soft noises.  When we are unable to understand, we look
for possible clues and take a guess.  We are sometimes
correct and everyone is happy, but when we are wrong - we
try again until we get it or he (Ethan) gives up.  On occasion
he gets upset and it really shows.  His verbal noise gets louder
and he starts to fling his arms.  This really wears him out and
he usually is very calm or even naps briefly afterward.
It is not only frustrating for Ethan, but to the rest of the
family as well.

Ethan's  mail has slowed down,  only three last week and then
no mail over the holiday week-end.   Ethan discovered two
new movies this week-end.  He is very happy with  Emma
Thompson in "Nanny McPhee" and "Nanny McPhee Returns".
Watched them both on Sunday and Monday.  Thanks to
these two movies,  I can no longer use the phrase "when pigs fly".
Digging into my bag of phrases to use that will please Ethan.

We continue to be thankful for all the prayers and support from
so many.  Thank you all so much.