Well, the LA experience is done. Ended up with blood work, an MRI, and an additional MRI for more detailed information. He was a trooper through it all, great attitude ! As Ethan was leaving CHLA his lead doctor gave him a "first time ever" invite. He got to go into the Dr.'s personal lab. Only child patient ever allowed in ! And if that was not enough, she set up a microscope with cell slides for Ethan to view. It was so cool for Ethan and wonderful for us (adults) to see his Dr. ( so very intelligent ) talking and sharing with a five year old - like best buddies. He talked about the lab all the way home. He would like to be a Dr. when he grows up - after being a fireman, policeman, pilot, ... well I think you get the picture.
His new phase of treatment is now set. He will continue with the physical and speech therapy, and now has a med schedule. Has several meds which must be taken at very specific times for 5 days. On day 5 he must have blood work taken at CHLA, then nothing for 3 weeks. Then it starts all over again.
When Ethan got up this morning, he had a package from Marianna, Fla. to open. He was surprised as he does not know anyone there. After opening the package he discovered that it was from a teacher who mailed Ethan "feel better soon" cards from all her students. He was really moved by this and asked me why would they do this ? In addition to all the terrific cards, he got some colors, color books, and dinosaurs which were very cool. After explaining that the teacher is the daughter of Dave & Wendy, go Vols, and that is how she knew about Ethan, he was better with it. His question now is how do I say thank you to so many people so far away ? We are working on that, enjoy photos of the Fla. package.
Again, thanks to everyone for prayers and support - guess this planet isn't so bad after all.
Opening the package from Fla. Thank you
Mrs. J.C. and class.
All the way from Fla. to me - amazing !
me - WOW !!!
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