Wednesday, June 26, 2013

Update  #  36

The past week has been a busy one.  We used Ethan's pass and went to Sea World for an afternoon / evening.  We were able to see Shamu, the sharks, and lots of fireworks.  Summer evenings at the beach are great !

Sunday Ethan and Dad went to Medival Times for dinner.   Swords, food and winches was the big evening event together.  He was impressed and talked  about it most of Monday.

Tuesday was the drive into LA again.  We were happy to be able to stay at Ronald McDonald House again.  Ethan feels comfortable there and the staff is great !  Got up and out early so we could have breakfast at Griffith Observatory and followed it up with a walk around the observatory.  Then we went to CHLA and  had blood work done -  again the process went well.  The hospital team (Ethan's) was VERY happy with the lab results.  He continues to hold his own with only obvious sign of weakness being his hair loss (back of head and part of both sides) and his endurance.  If there is much physical activity - a nap is usually in order  shortly after (usually in the early afternoon).

After leaving CHLA, Dad and Grandma took me to the El Capitan Theater in Hollywood for a special stage show / movie.  Was very surprised to get to see Monsters University in 3D - WOW !

We continue to be thankful for the prayers and words of support that seem to always be there.  Thank all of you for keeping Ethan in your thoughts and prayers.

                                                                              Ethan and two new friends from Sea World
 





Griffith  Observatory









Monsters University - stage show portion
at the El Capitan Theater in Hollywood

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