Update  #  34

The weekly trip to CHLA went well.  The blood work was easy and I received new meds for use on  Sat. and Sun. only - go figure.

Dad, Uncle Keith, and Grandma took me to the beach this week.  Had a great time until the wave took me out.  Uncle Keith was suppose to hold my hand, I guess he is afraid of waves cause he let go and got out of the way !  ha ha  Was able to find some neat sea shells and overall had a great trip.

Grandma made the mistake of asking me what I wanted for lunch yesterday.  Yes, the whole family went to Miguel's for some super Mexican food.  I really like the chicken enchiladas with beans and rice - ummmmm.

Talked with two ladies from Make -A-Wish Foundation today.  Nothing decided but lots of information shared.  This was set up by my team of doctors at CHLA, they are always thinking of me.

Thanks for the continued thoughts and prayers, they mean so much to all of us.