Update # 53

Today was the big day, and it lived up ( or down ) to all our expectations.
What was suppose to be a quick lab followed by a meeting with the team
did not follow plan.  The meeting was first, followed by a second meeting,
followed by lab work, followed by a meeting, and then about 2:00 they
headed home.

The news :  Ethan's tumor is growing again.  If nothing is done his time with
us is going to be very short.  So, they are going to try a med combo to see if
it will stabilize him and next week try his weekly meds again.  If he is not
stabilized, we are looking at quality of life and options for palliative care.

Today marks 180 days that he has blessed us  beyond what was to be.  This
afternoon / evening we all played, did puzzles, laughed, and had a great evening.
He asked us if we remembered eating fish dinner at Long Beach last week.
He said he really liked that so here is that photo.

Sept.  3,  2013 at Long Beach, Ca.

At what I think is called
Parker's Light House Restaurant.





We want to thank all of you who continue to pray and offer support for Ethan.
We are truly blessed with world class friends and family.  THANK YOU !