cards down to a much more manageable number, and this also seems to
please Ethan as well. Our experience is a learning one that offers new
insights almost daily.
We also started using a suction machine to assist Ethan with an ever
increasing amount of thick saliva building up in his mouth. The way to
explain it is like what a dentist uses on you (you all have that picture
now huh). As it was demonstrated for us by our hospice nurse, she cautioned
about getting to deep in his mouth or attaching to tongue or a cheek.
Guess who tried to suction off Ethan's face ? Even Ethan got a laugh
out of that and is now the never forget what Papa did story. Mention it
to Ethan and he laughs and does the cover the eyes thing - cute.
Ethan continues to smile and make us smile on a daily basis. This in
spite of the fact that he has dropped more weight (weighs 48 lbs. now), and
his lack of strength causes him to need a short power nap or two during
the day. He was very excited yesterday when he received a note
from "Ducky" in the mail. Totally amazes me the reaction he has when
talking about her or when they see each other - neat Lady !
We continue to thank everyone for the continued prayers and support.
Following is a recent picture of Ethan with his new "Superman"
pillow pal - Thanks Dave and Wendy.
Feb. 2014
Ethan and pillow pal.
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