Update # 96

Day 348 and Ethan is back to his old self.  Joking with us and
laughing at funny moments on TV.

Marta (Hospice nurse) came by this a.m. ,  all is well
considering.  We also took his weight today.  Ethan checks in at
44.3 lbs ( 20.09 kilograms ).  That is a loss of about 4 lbs. in
the last month.

Monday Ethan got a package from his friend Alisha (Ducky) at
CHLA.  This was great and made for lots of smiles that afternoon.
That was followed up by a text message on Tuesday,  Ethan
thinks Ducky likes him (BIG smile !).

Ethan is really starting to slow down.  He prefers to just lay and
watch TV or get read to.  Moving about seems to be quite a chore
and he tires quickly.  However,  yesterday Dad did get him in his
wheel chair and outside for some "sun" time.  Once it was over, all
was good.

We continue to be thankful for the prayers and support that comes
our way.  Our thanks to all of you.

Ethan with goodies from
Alisha.  Notice the "Ducky"
on his shoulder - he wanted it
placed there for the
photo.

Feb.  24, 2014