Update # 93

Ethan is having a "just let me rest" day.  He usually wants to
watch TV,  be read to,  or go outside and look around.  But today
was just let me lay down.  When we would ask him what he
wanted to do,  or when we would offer suggestions  -  the response
was always  "no" .  He did,  late this afternoon,  agree to sit and rock
with grandma.  This also provided the picture at the bottom of this post.

Over the past month Ethan has moved between several days in a row of
stable health and abilities,  to a day or two of obvious decline,  to then stabilize
for several days again.  I am hoping that tomorrow will find him back to a
more involved and stable condition.  He is such a strong fighter.

Ethan received an e-mail from Alisha (CHLA) this evening..  This message
brought a grin to his face at his bed time  - thanks Alisha !  Not sure what
pleased him more,  the subject or the "3" at the end.  Knowing these two,  it
was probably both.

We continue to be thankful for the prayers and support offered by so many.
Life both surprises and amazes when you least expect it.

Ethan and Grandma while
sitting and rocking together. 

Feb.  2014