Update # 117

Well it finally happened.  For the first time since we began
hospice,  Ethan displayed discomfort to the point of pain.
Hard for Ethan,  awkward for the family.  Our ability to
communicate is difficult at best,  but trying to determine
what is wrong or have Ethan tell us is almost impossible.

In addition to this (as if that is not enough),  Ethan has on
several occasions the past few days passed a small amount of
blood in his urine.  Does not seem to be any pain at time of
urination but scary to us all the same.

The good news is "hospice".  Our regular nurse Marta was here
very soon after our call.  She was calm,  knowledgeable,  and a
known face to Ethan.  In addition to her visit,  Ethan's doctor,
Dr. Mall,  came to visit Ethan.  Again,  on top of what is going
on and very reassuring to Ethan and family.  Ethan really likes
him as does the family !

I guess with all that is happening these past few days,  Ethan really
does demonstrate his bravery,  as his recent award proclaims. 

Ethan sat in his wheelchair on the back porch and watched Dad
give Chip (family dog) a bath this morning.  This was great fun for
Ethan but not as much for Dad or Chip.  But it was good to get
outside - no strong winds or real high heat.  It is good that we have
a central location for Ethan's oxygen machine and a long hose from it.

As always,  we are grateful for the continued prayers and support
that are offered for Ethan and the family.  Thank you all very much.