Update # 131

Day 506 and all is well in Ethan's space.

It has been a long but good week for Ethan.  There has been
laughs and moments of real quiet, but Ethan continues with
his desire to live life.

Earlier today we did a weight check on Ethan.  His weight
continues to stay about the same.  Today his weight is 38.4
pounds  ( 17.4  kg ).  This is 0.4 lbs  ( 0.1 kg ) less than his
last weight about mid July.  He has grown taller, but we have
not checked for an exact amount lately.

Ethan and Grandma have been getting a lot of tomatoes from
their garden.  Enough that Ethan has delivered some to the
neighbors.  This is both fun and sad for Ethan.  He really
likes taking them to our neighbors,  but is a bit sad being stuck
in his wheelchair in front of them.  He is VERY aware of his
appearance in front of others.  He really does not like people
(strangers) staring at him.  Does not like being perceived as
different, less than normal.

Yesterday Ethan and Papa watched a video about Robin Hood
while Grandma and Dad (Kent) was gone shopping.  It was
the Disney animal version.  When the DVD was over,
Ethan and Papa shot foam arrows at each other and had a
toy sword fight.  As is usually the case, Papa lost with much
fan fare and Grandma and Dad busted us for playing so loud
and wild.   Papa is fun to play with, but almost always gets
caught when breaking the rules ( smile ).

We wish to thank all of you for your support and prayers,
it means a lot to all of us.