Update # 137

Ethan's Day  532

Wednesday evening and night were difficult for Ethan.  He
was having a hard time breathing and saliva was building
up in his throat.  Thursday morning was a real rough time
for Ethan.  Thank goodness we have a great nurse (Marta)
and our involvement with So. California Hospice Foundation.
We have had a doctor, round the clock nurse time and lots
of calm support from all of them.  A Great Team !

Thursday evening saw Ethan a bit calmer and resting.  His
breathing is so shallow, it is almost scary.  I fear his battle
with DIPG may be coming to an end (very sad face).  His
lead doctor (and friend) Dr. Epstein has come by to see Ethan.
A long drive in holiday traffic and still she came.

Will keep you all informed as news becomes available.  As of
now he is resting and seems comfortable.

As always we thank you all for your support and prayers.  And
a special thank you to all the medical people that have helped
these past two days and So. California Hospice Foundation.