Update # 132

Today is Ethan's  "Day 512".

Ethan  has had an up and down week.  Overall Ethan continues
to have good days.  He enjoys life to the extent that he can and
always finds something / someone to smile with.  But over the
past few days he has experienced what I refer to as body tremors.
They seem to be mostly on his right side, his leg mostly but also
sometimes in his arm as well.  This morning he has had them in
both arm and leg at the same time.  A bit unsettling  for Ethan
and us as well.  He does not have any real pain with them, but
I assume they are much like a muscle cramp that we all have
had at one time or another.  Must be scary for him though ...

Ethan is lucky to have received some very special cards from
Logan and Tristan in the past.  Because they are both serving
in the US military overseas, Ethan and I have just sent them
a "care package".  Ethan had a ball telling me what to put in
the box and how many.  His wants and the box size did not
always match, but the packing is complete.  He enjoyed the
mailing of this package as much as he enjoys getting mail.
It was really fun for me watching him go through this whole
activity - enjoy it guys !

Also, this past week has seen several cards from Karen and Tom.
They are very nice and always seem to know just the right
card to excite Ethan.  Thank you both very much !

Last night Ethan and his Dad (Kent) were watching the
Angels  vs  Red Soxs on TV.  There were a couple of minutes
at different points in the game when they were both making so
much noise,  you would of thought they were really at the game.
Ethan enjoys seeing outfielders jump for a ball or when infielders
slide to catch a ball.  Great baseball fan (smile).

We continue to be thankful for the support and prayers from
so many, thank you all so much.  Ethan sends a high five  to
all of you.