Update # 133

Day  516  and Ethan continues to roll on  !

Ethan's family, his doctors, and supporters are all pretty happy.
By most results and histories, less than 10 % of DIPG
patients survive past 18 months.  As of today,  Ethan is
12 days past the 18 month marker - Yea  !!!!

Ethan continues to get mail which pleases him a lot.  His
most recent mail was a package from Grandma's friend
Marge,  a package that had books in it.   This is great
as Ethan loves to have books read to him.

To every one's surprise,  Papa did some shopping when he
got out the other day.  He got Ethan some "Superman" sheets
for his bed.  This turned out to be a good thing as Ethan liked
getting a gift,  and he also likes all kinds of super heroes.

This past week-end Ethan hung out with his Dad and did some
guy time watching TV and reading books.  While they were
busy Grandma and Papa went out to dinner with good friends
Tom & Karen.  The food was good and the company was
great.  Thanks to Tom & Karen for clearing the schedule and
getting us out for a bit,  it was over too quick but good  none
the less.

As always, we close our notes with a thank you to everyone
who continues to support and pray for Ethan and his family.
It means a lot to all of us.